With the start of Ramadan just under a month away, we’re sharing the story of Kareem, who has CF. Kareem and his sister Yasmin, who are both part of our Youth Advisory Group (YAG), recently reviewed our information for Muslims with CF who are making decisions about fasting during the month of Ramadan.
For us to better understand the true cost of CF, and how we can better support the community, we've put together a short anonymous survey to get a true representation of what our community faces day-to-day.
In this blog, we catch up with Caitlin, the brains behind our brand new #CFTruths campaign to find out more about her, her CF journey and her hopes for the future.
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Jamie Inkles, Policy Analyst
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We want to make sure that everyone with cystic fibrosis (CF) can live a life unlimited. This extends to school settings, where we want to see the issues faced by the CF community in schools addressed in new Government guidelines.
Lian is mum to Henry, 6, who has cystic fibrosis (CF). As part of our #CFTruths campaign, here she shares some of the things she wishes more people knew about CF.
