Today we have joined forces with charities across the UK to ask the Secretary of State for the Department for Work and Pensions (DWP), Thérèse Coffey, to stop plans to restart ‘managed migration’.
Since Kaftrio was licenced in 2020, many people with cystic fibrosis have shared their experiences of the treatment including the different ways it has affected their mental and physical wellbeing. We recently updated our factsheet on Kaftrio, reflecting these varied and often complex experiences.
Here, our Director of Medical Affairs Dr Keith Brownlee addresses the subject of mental health and Kaftrio, sharing the latest advice from the CFMA and highlighting the support available from your CF teams and Cystic Fibrosis Trust.
Poppy, 31, from Wales, was the winner of our Helen Barrett Bright Idea Award back in 2015. Following her first solo art exhibition, Poppy tells her story of living with CF and receiving a double lung transplant, the impact of CF on her mental health, and why budding artists should ‘stop scrolling and start experimenting’.
The purpose of this observational study is to collect information on the clinical characteristics (such as CFTR genotype and disease severity), treatment requirements (such as hospital visits and use of antibiotics), and quality of life of people with cystic fibrosis who are taking Kaftrio prescribed by their doctor as part of their routine care. This is an observational study. Participants do not have to complete any additional study procedures or attend study visits, but will be asked to give informed consent for their data to be used in the study. The data collected in this study is information that is...
We know that everyone’s CF is different. This includes the differences in the effects that people taking Kaftrio experience. Our Research in Focus report on the long-term effects of Kaftrio, published today, explains why it's important to understand more about this medicine. Cystic Fibrosis Trust is a co-funder on a research study called RECOVER that aims to understand the ‘real world’ effects of Kaftrio. Here we explain five things to know about the RECOVER study.
