We welcome the news that new antiviral and antibody treatments will be made available for people post-transplant and most vulnerable to COVID-19, who have had a positive PCR test. And for anyone with cystic fibrosis (CF) over 18, there is also the opportunity to take part in an antiviral treatment trial after testing positive for COVID-19.
People with CF who are post-transplant and have received at least their third COVID-19 vaccine dose will be able to participate in a new MELODY study announced today.
Following the exciting announcement of a new national study into the effectiveness of COVID-19 vaccines for people with weaker immune systems, Vicky Pettersen, who had a double lung transplant over 20 years ago, shares her story and reflects on the impact the pandemic has had on her life.
Our ambition is to make sure that everyone with cystic fibrosis (CF) can look forward to a life unlimited by the condition. We want to ensure that the CF community receives the best care, the right treatments, and the right support – so we have made our concerns about disability benefits heard and made sure your voice is at the heart of that.
For people living with rare diseases like cystic fibrosis (CF), the impact of the COVID-19 pandemic has been far reaching, with both positive and negative outcomes. Dr Jamie Duckers, Consultant in CF and Respiratory Medicine at Cardiff and Vale University Health Board, talks about how the CF community has been affected by the pandemic.
