Meet Rosie and Seb, who both have parents with cystic fibrosis (CF)! The Lost Collar Investigation and Seb's Best Game are two books by Cystic Fibrosis Trust for children who have parents with cystic fibrosis.
Our Trial Coordinators play a key part in supporting participation in CF clinical trials. We spoke to Debbie Miller, Early Phase Trial Coordinator at the CF Centre in Edinburgh about her role.
Lynsey Beswick, Public Affairs and Advocacy Manager at the Trust, reflects on the year since the landmark deal for access to Kaftrio in England was announced amidst the COVID-19 pandemic.
Providing relief for the digestive symptoms of CF was a health priority identified by the CF community in a survey published in 2017. Today we’ve published a Research in focus report which highlights Trust-funded research underway to increase our understanding of these symptoms and to develop more effective treatments for them.
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Jacqueline Ali, Head of Information, Support and Programmes
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This year’s CF Week is all about how, as a community, we won’t stop: whether that’s researching for ground-breaking discoveries, supporting the physical and mental challenges of cystic fibrosis (CF), or responding to the varying needs of the diverse CF population. Here, Jacqueline Ali, Head of Information, Support and Programmes at the Trust, talks about work the Trust is doing to ensure our information and support services reflect the diversity of the CF community.
