Exercise and physical activity are beneficial for people with cystic fibrosis (CF), as it helps with airway clearance and quality of life. This project will establish if an internet-based physical activity logging programme (called ‘ActivOnline’) increases physical activity participation in people with CF aged 12-35 years. This programme has been trialed in a small group of adults with CF, and we now want to see if this is effective in a younger population, as well as a wider group of young adults. The investigations for this study includes three separate rounds of some questionnaires, wearing a physical activity monitor for...
This study evaluated whether an online physical activity intervention was effective at increasing physical activity in adolescents and adults ages 12 to 35 with CF. This study was forced to pause due to the COVID-19 pandemic in 2020 and ultimately the study was terminated after the subsequent recruitment efforts failed to recruit participants.
This year’s CF Week is all about how, as a community, we won’t stop: whether that’s researching for ground-breaking discoveries, supporting the physical and mental challenges of cystic fibrosis (CF), or ensuring everyone with CF has access to the best possible treatments. Here, Nubi shares her journey of starting on Kaftrio, exploring her personal experiences and views of the new triple combination therapy that was licensed last year.
This year’s CF Week is all about how, as a community, we won’t stop: whether that’s researching for ground-breaking discoveries, supporting the physical and mental challenges of cystic fibrosis (CF), or helping people with CF live a fulfilled life. Here, 29-year-old Rachel, aPsychological Wellbeing Practitioner and Teaching Fellow in Psychology at Ulster University, Northern Ireland, shares her experiences of growing up with CF, the importance of wellbeing and her tips for finding balance in life.
This study is being carried out to learn more about the information that wearable technology can give us on physical activity, cough frequency and sleep quality in people with cystic fibrosis (CF). All visits in this study are home based and will be conducted via telemedicine video conference via a mobile app. Study participation will last about 16 weeks: after a 4-week screening period with one remote study visit, there will be 12 further remote visits over the remaining 12-week study period. Throughout this study participants will continue their usual activity and treatment regime. The study involves the participant wearing...
As one community, we understand the importance of remembering and celebrating the lives of everyone with cystic fibrosis (CF), including those who are no longer with us. This CF Week and throughout June, share a memory, photo or message on our Dedication page, to remember and celebrate your loved one’s life. Here, Hollie shares her memories of her older sister Hannah, and how she pays tribute to her by supporting the Cystic Fibrosis Trust.
Nicky Rees, the Trust's Welfare Officer, answers some frequently asked questions about Disabled Students' Allowance, and possible support available for students living with cystic fibrosis (CF).
Our Student Support Service offer individual, personalised support for further and higher education students with cystic fibrosis (CF), to talk through a student's circumstances.
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Jessica Jones, Public Affairs and Policy Analyst
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The Trust's Jessica Jones, Public Affairs and Policy Analyst, outlines information and advice around the effectiveness of the COVID-19 vaccine for people with cystic fibrosis (CF) who have had a transplant.
