Mandy is taking part in her third Great Strides in 2019. After volunteering as a marshal in her first year, she was inspired to take part in 2017, and is now pulling together a team for the Brecon Beacons walk in June. Mandy tells us about her motivations for taking part in Great Strides, her top training tips, and how you can have a “fabulous time” walking across 40 miles of Welsh countryside.
As the Trust unveils the second round of Clinical Excellence and Innovation Awards, supporting ground-breaking projects in clinical care, we hear from PhD student Helen Douglas, who is part of the Project Fizzyo team supported through an award to Great Ormond Street Hospital.
We know that the coronavirus (COVID-19) pandemic has meant changes to care for people with cystic fibrosis (CF). At the Cystic Fibrosis Trust, we’re negotiating behind the scenes to make it easier for you to monitor your health remotely. While these negotiations are ongoing, we wanted to update you on how researchers within the Trust’s latest digital health research programme ‘Project Breathe’ are responding to COVID-19, to help you monitor your health at home.
The Cystic Fibrosis Trust has today expressed dismay after discussions to make ground-breaking new precision medicines available on the NHS appear to be stalling.
One of the major elements driving the Cystic Fibrosis Trust’s Clinical Trials Accelerator Platform is Patient & Public Involvement – or PPI for short. This means putting the community at the heart of our commitment to supporting access to clinical trials. For CF Week, PPI Coordinator Lorna Allen brings you an update on how the community is helping develop this major body of work.
