Three years ago, you told us that your top priority for research was to understand more about growing older with CF. In this blog we explore how researchers are tackling this complex topic – and how you can help us fund even more research to unlock answers.
The UK Health Security Agency (UKHSA) and the Medicines and Healthcare products Regulatory Agency (MHRA) have issued a reminder to the public to stop using, and dispose of any non-sterile, alcohol-free wipes they may have at home.
Learn about Melioidosis, a bacterial infection found in tropical regions. Key travel information for people with cystic fibrosis (CF) to stay safe abroad.
This month, CF modulator Alyftrek was approved, the Government launched a new life sciences plan, and our incredible supporters continued to raise awareness of CF.
Our supporter Gail has been fundraising for Cystic Fibrosis Trust for nearly 25 years. Together with friends and family, she set up the Amelia Fund, a fundraising branch named after her niece, who was diagnosed with CF in 2001. The branch has raised over £200,000 through the years in all manner of ways – from runs to treks, balls to raffles. We spoke to Gail about the inspiration behind her fundraising and her hope that one day everyone with CF can lead a life “without fear, worry, illness and anxiety”.
The Trust shares stories from the community of ongoing struggles sourcing Pancreatic Enzyme Replacement Therapy (PERT), and calls on you to share your latest experiences.
