Discover key insights from the 2024 UK Cystic Fibrosis Registry Report, highlighting trends in health, treatment, and outcomes across the CF community.
Everyone at Cystic Fibrosis Trust was very sorry to hear news of the death of Mary Dodd CBE, who passed away last month. Mary was one of the co-founders of the Manchester Adult CF Unit, now one of the largest cystic fibrosis centres in Europe. Here, Mary’s colleagues, Professor Kevin Webb and Professor Andrew Jones, consultant physicians at the centre, pay tribute to an “outstanding clinician”.
CF lung infections can have a huge impact on the daily lives of people with CF. Our new Translational Innovation Hub Network for CF Lung Health and Infection aims to change that, fast-tracking improvements in how lung health and chronic lung infections are detected, treated and managed. As we mark one year on from the launch of the CF Lung Health Network, we reflect on how it came about and what difference it could make.
Since 2014, we’re delighted to have funded 72 Summer Studentships, in 18 different cities across the UK. These provide medical and basic science undergraduates with hands-on experience of cystic fibrosis (CF) research over the summer holidays – and aim to attract the brightest and best into a future career in cystic fibrosis.
This month, our amazing supporters raised vital funds and awareness, and the Trust signed a joint statement calling for the inclusion of older people in research.
From cutting a trip short due to poor health in his twenties, to being diagnosed with CF, then travelling to Antarctica – we spoke to Josh about his amazing life travelling the world.