Alongside other major charities, Cystic Fibrosis Trust signs statement of intent, backed by Sir Chris Whitty, for the inclusion of older people in research
Three years ago, you told us that your top priority for research was to understand more about growing older with CF. In this blog we explore how researchers are tackling this complex topic – and how you can help us fund even more research to unlock answers.
The UK Health Security Agency (UKHSA) and the Medicines and Healthcare products Regulatory Agency (MHRA) have issued a reminder to the public to stop using, and dispose of any non-sterile, alcohol-free wipes they may have at home.
Learn about Melioidosis, a bacterial infection found in tropical regions. Key travel information for people with cystic fibrosis (CF) to stay safe abroad.
This month, CF modulator Alyftrek was approved, the Government launched a new life sciences plan, and our incredible supporters continued to raise awareness of CF.
The aim of the study is to look at whether a personalised activity plan (walking and strength) can impact risk factors for heart health in people with cystic fibrosis (CF). It will also look at the best ways to deliver activity-based interventions, and whether a home blood testing kit works well for people with CF to avoid needing a traditional needle blood sample in future research trials. Key outcomes we will be looking at include activity levels, blood pressure, lipid levels (measurement of fats in the blood), cholesterol, insulin and a measure of blood sugar control. The research will be...
Our supporter Gail has been fundraising for Cystic Fibrosis Trust for nearly 25 years. Together with friends and family, she set up the Amelia Fund, a fundraising branch named after her niece, who was diagnosed with CF in 2001. The branch has raised over £200,000 through the years in all manner of ways – from runs to treks, balls to raffles. We spoke to Gail about the inspiration behind her fundraising and her hope that one day everyone with CF can lead a life “without fear, worry, illness and anxiety”.
