As part of our programme of employment support for people with CF, Work Forwards, 38-year-old author Julian shares his journey into writing and talks about how he manages his schedule alongside his CF.
In this blog, Dr Jamie Duckers, Consultant in CF and Respiratory Medicine at Cardiff and Vale University Health Board, shares his thoughts on the importance of Patient Reported Outcome Measures (PROMS) and how they can improve communication between people with CF (and their families) and their healthcare team which can lead to greater satisfaction, improved adherence and better outcomes.
Running from Monday 11 September - Friday 15 September our Work Forwards team will be hosting a series of free online events focusing on all things employment for the CF community
Running from Monday 11 September - Friday 15 September our Work Forwards team will be hosting a series of free online events focusing on all things employment for the CF community.
We spoke with Carley, Mum to 2-year-old Ava who has CF, about Ava’s diagnosis, navigating those initial stages, her hopes from Kaftrio and advice for other parents.
