We’ve partnered with Emily’s Entourage so that people in the UK who are not able to benefit from current modulators can join their CF Clinical Trial Connect database and be alerted of relevant UK trial opportunities.
The past few years have been full of ups and downs for the CF community. As we reflect on this, and the past 60 years of the Trust, we also think about the future – what might the next 5 to 10 years look like for people with CF? What are the challenges we might face, and what are the opportunities we don’t want to miss? And above all, how we do make sure everyone with CF has the same opportunity for good health and the life they want?
Our work wouldn’t be possible without the incredible support of our 39 fundraising branches up and down the country. From Dundee to Dorset, they offer support, organise fundraising events, and advocate on behalf of the CF community. We can’t thank them enough! We chatted to Sharon, who is part of the Fakenham fundraising branch, to hear about the motivation behind her fundraising – over £84,000 and counting – and her hopes for a future where we have “seen off CF”.
We’re asking the CF community to share your experiences accessing Creon, as supply chain disruptions lead to widespread shortages of the vital pancreatic enzyme replacement therapy.
Add your loved one's name to our Book of Remembrance, honouring those who have passed from cystic fibrosis (CF). A heartfelt tribute to their memory and legacy.
Join us this month to hear more about our incredible fundraisers and the work we're doing to raise awareness of key issues impacting people affected by CF
