Today the top 10 refreshed priorities for cystic fibrosis research were announced. Chosen by the CF community in a project that began in January this year, these results will help set the direction for future CF research.
Katie Marsden is a specialist CF dietitian at the West Midlands Adult CF Centre. Here she provides some top tips to help people with CF eat well on a budget.
Today we were thrilled to announce the new top 10 priorities for CF research. These priorities were identified by people with CF and their loved ones, CF professionals and CF researchers, by sharing their views over the last 11 months. Here we provide answers to some of the questions you may have about the project.
On Thursday (17 November) the Government announced its Autumn Statement, with details of spending plans for the next year. It covered a number of different areas, with announcements around benefits, cost of living support, national living wage and energy prices. Here we look at what it could mean for people with cystic fibrosis (CF).
This week it is World Antimicrobial Resistance Awareness Week (WAAW). Antimicrobial resistance (AMR) is where medicines such as antibiotics or antifungals are no longer effective at treating infections, as the bugs have developed ways to avoid their effects. PhD student Elliot Mahoney is investigating new ways to treat complications arising from Aspergillus fumigatus infections in people with CF, a fungus that is becoming resistant to current antifungal treatments. To find out what this means on a day to day basis, he talked us through a typical day in the lab.
From supporting people through the COVID-19 pandemic and campaigning for access to Kaftrio, to funding vital new research and providing information to people with CF when they needed it most, with your help we achieved some amazing things in 2021/22. Here are just some of the ways we’ve made a difference, together.
This month we're sharing the latest updates on two exciting research studies we’re co-funding into antibiotic-related hearing loss, which researchers estimate affects around 50% of people with CF. We spoke to Macauley, 26, about learning he had hearing loss, the adjustments he’s made, and his determination to not let CF define him.
