On Thursday (17 November) the Government announced its Autumn Statement, with details of spending plans for the next year. It covered a number of different areas, with announcements around benefits, cost of living support, national living wage and energy prices. Here we look at what it could mean for people with cystic fibrosis (CF).
This week it is World Antimicrobial Resistance Awareness Week (WAAW). Antimicrobial resistance (AMR) is where medicines such as antibiotics or antifungals are no longer effective at treating infections, as the bugs have developed ways to avoid their effects. PhD student Elliot Mahoney is investigating new ways to treat complications arising from Aspergillus fumigatus infections in people with CF, a fungus that is becoming resistant to current antifungal treatments. To find out what this means on a day to day basis, he talked us through a typical day in the lab.
From supporting people through the COVID-19 pandemic and campaigning for access to Kaftrio, to funding vital new research and providing information to people with CF when they needed it most, with your help we achieved some amazing things in 2021/22. Here are just some of the ways we’ve made a difference, together.
This month we're sharing the latest updates on two exciting research studies we’re co-funding into antibiotic-related hearing loss, which researchers estimate affects around 50% of people with CF. We spoke to Macauley, 26, about learning he had hearing loss, the adjustments he’s made, and his determination to not let CF define him.
Some people with CF can develop hearing loss after receiving aminoglycosides antibiotics such as tobramycin, amikacin or gentamycin. But screening for hearing loss in CF can be expensive and difficult to arrange. Over the last eight years CF clinician Dr Anand Shah and audio engineer Dr Lorenzo Picinali have been investigating innovative new methods to change this. Their latest cutting edge research study, co-funded by the Trust and RNID, is testing whether hearing can be monitored at home using virtual reality and gaming. We spoke to them to find out more.
Everyone with cystic fibrosis has a different story to tell. This is Joanna’s story.
Joanna is a mum of four children, two of whom have CF, and Trustee of Cystic Fibrosis Trust. Here she reflects on life with two children with CF, how Cystic Fibrosis Trust helped during those early days, and what her perfect gift would be this Christmas.
