With the emergence of new medications and treatments that are prolonging the lives of those with CF, more and more people will be experiencing the effects of the menopause. October is Menopause Awareness Month, so we want to open up the conversation about menopause and CF and answer some of your questions on this important topic. In this blog, we’ve pulled together some of the latest information and top tips for those with CF going through the menopause.
Everyone with cystic fibrosis has a different story to tell. This is Jordy's story.
Jordy Deelight is 27 and a non-binary artist, singer and DJ from Edinburgh. We chatted to Jordy about balancing CF and performing, their hopes and dreams for the future, and the importance of listening to your gut.
As new research is published looking at the risk of bowel cancer for people with CF, Dr Keith Brownlee, Director of Medical Affairs at Cystic Fibrosis Trust, explains more about the study and how the Trust is supporting research to better understand CF and cancer.
Tonia is 51 and a member of the Involvement Group at the Trust. She has two daughters and runs the office at a school. In her spare time, she manages a girls’ cricket team. Tonia was diagnosed with CF at three months old and in this blog talks about life with CF, celebrating her 50th birthday, and becoming a mum.
Dr Maya Desai is a respiratory paediatrician at Birmingham Children's Hospital, where she has worked as a consultant for nearly 20 years. She has recently published a research paper, along with the Trust, looking at the characteristics of those who can't benefit from modulator therapies like Kaftrio, which found that a high proportion are from an ethnic minority background. In this blog, Dr Desai sheds more light on this research and what we can do to make sure everyone with CF can access the life-changing treatments they need to live a life unlimited.
Lucy Baxter is the host of the Trust’s new podcast series, CForYourself, as well as hosting her own podcast, From a Lancashire Lass. Here, she explains more about what inspired her to start podcasting, her passion for telling stories, and following in Graham Norton’s footsteps.
