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Amy's top tips for organising a gaming fundraiser

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Calling all gamers! Did you know you can play the games you love AND raise vital funds to help everyone with cystic fibrosis (CF) live a life unlimited? Our supporter Amy shares her top tips for fundraising through gaming. 

 

Spring Statement

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This week the Chancellor of the Exchequer, Rishi Sunak, made his Spring Statement, announcing that inflation is forecast to be as high as 7.4%.

Search result from the Trials Tracker

A study to investigate the effectiveness and safety of a new Vertex once daily triple therapy in people with CF (VX20-121-103)

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This trial has been archived

This study aims to look at the safety and effectiveness of a new triple combination CFTR modulator treatment, which is made up of the 3 medications VX-121, tezacaftor (TEZ) and deutivacaftor (D-IVA). Deutivacaftor is a slightly modified version of ivacaftor which makes it potentially more stable in the body. This means deutivacaftor can be taken once per day instead of twice daily. The safety and effectiveness of this new triple combination treatment will be compared against Kaftrio® (which consists of the 3 CFTR modulators elexacaftor, tezacaftor and ivacaftor). CFTR modulators help the faulty CFTR protein to function properly. To take...

This study assessed the safety and effectiveness of the new 'vanza triple'  in people with CF ages 12 and older who haveat least one gene variant, including F508del, that is responsive to triple combination therapies like Kaftrio. The results of this study show that this new therapy is at least as good at Kaftrio in improving lung function and it is better in reducing sweat chloride levels. 

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Trials Tracker ID
TT007271
Age range
12 years and older
Length of participation
64 weeks
Trial status
Closed with results
Therapeutic approach
Restore CFTR Function

“The smallest things make your heart flutter”: Bianca’s Mother’s Day story

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Bianca and her husband Gearóid thought their dream to start a family might never happen, but four months ago they were over the moon to welcome their beautiful baby boy Jude into the world. To celebrate Mother’s Day, we caught up with Bianca to chat juggling motherhood and cystic fibrosis (CF), letting go of ‘perfect’, and how it feels to see her son smile.