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Linking UK CF Registry and cancer registry data to understand more about cancer risk for people with CF

We spoke to Leeds-based Professor Daniel Peckham and Dr Amy Downing about their new research study to understand more about the risk of developing cancer in people with cystic fibrosis.

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Reflections from the European CF Society (ECFS) conference: “the commitment of people to make a difference is so impressive”

At the beginning of the month nearly 2,000 people gathered in a conference centre in Lisbon. They travelled from the UK, across Europe and far beyond, to meet, share  knowledge and above all improve the lives of people with CF. Here we share our thoughts on what we heard.

Overseas Challenges

Whether it’s trekking the Great Wall of China, conquering Mt Kilimanjaro or even cycling from London to Paris - choose your challenge of a lifetime.

Late diagnosis

Nowadays, most people with CF are diagnosed following newborn screening. However, sometimes the condition may not be diagnosed until later in life.

What is the lung microbiome and why is it important to study it in CF research?

To celebrate World Microbiome Day on 27 June we chatted with Lillie and Heritage, two early career researchers working within the Precision-CF Innovation Hub, to find out more about their research and take a look inside their labs.

Statement in response to health assessments to be recorded as standard

Today (29 June), the Government announced that health assessments for disability and sickness benefits will be audio recorded as standard to improve transparency in the benefit system.

Parents and children

The early years of a cystic fibrosis (CF) diagnosis can be complex, but we're here to support you every step of the way.

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