Specialist CF physiotherapists Catherine Brown and Nicky Mills explain what has changed in the updated UK physiotherapy standards and why the changes matter for people with CF. Both were members of the guidelines working group, and Nicky is also Chair of the Association of Chartered Physiotherapists in Cystic Fibrosis (ACPCF).
Here are just a few projects that have been successfully developed with the influence of your lived expertise and support the future of CF for the current and next generations.
This week (3–9 November), we'll be shining a spotlight on some of the additional symptoms and complications that can come with living with cystic fibrosis, from gut symptoms to CF diabetes – showing CF is not just the lungs.
Get in the festive spirit by taking on a family friendly Santa Run, whether you're challenging yourself with a new distance, hitting a personal best or making memories with friends and family.
Alyftrek, or vanza triple, is a new triple combination modulator therapy. It is made up of tezacaftor, one of the modulators used in Kaftrio, as well as two new modulators called vanzacaftor and deutivacaftor.
Sometimes the best support comes from others who are in the same boat. That's why we're here to help you connect with other people with cystic fibrosis (CF) or parents of children with CF.
