A dedicated supporter is taking part in a naked skydive for the Cystic Fibrosis Trust, inspired to raise money by his friend’s nephew Elliot, who has cystic fibrosis.
NHS proposals to dismantle the body that represents cystic fibrosis (CF) clinicians and those directly affected by the condition meets strong opposition.
Research to develop a safe means of diagnosing cystic fibrosis during early pregnancy has begun at Great Ormond Street Hospital, a joint project funded by Action Medical Research, GOSH Children’s Charity and the Cystic Fibrosis Trust.
Lynsey Beswick, Public Affairs Officer at the Cystic Fibrosis Trust, will share her views on Orkambi® from a patient perspective with the Scottish Medicines Consortium (SMC) today.
Meet Grace, who is a keen runner and has cystic fibrosis. Find out about her starring role in “Cerys and Grace take a deep breath”, a show on CBBC about managing competitive hobbies at the same time as keeping on top of the challenging symptoms of cystic fibrosis.
When the author Helen Stevenson was told her firstborn daughter had cystic fibrosis she couldn’t bring herself to write any more. It felt like a distraction from tending and nurturing her baby. Now Helen has channelled her experiences into the beautiful memoir ‘Love like Salt’, a story about mothers, daughters, music and illness.