Find a clinical trial

Talk to your CF care team. They can tell you about opportunities in your area and further afield.

Contact a CF trial coordinator. Search our list of CTAP trial coordinators. For a particular trial, see the Trials Tracker listing.

Visit the Trials Tracker. Our Trials Tracker brings together all trials currently recruiting in the UK. Here you can browse trials in your area and further afield. 

Get in touch with CTAP. You can email CTAP if you have questions about current or upcoming trials.

Find clinical trials on the Trials Tracker

If you or your child is not able to benefit from current modulator therapies, you can register to Emily’s Entourage CF Clinical Trial Connect to stay informed about relevant clinical trial opportunities in the UK. The database is the first database designed exclusively for people who aren’t able to benefit from modulators, for example due to having a rare gene variant or not being able to tolerate or benefit from modulators for other reasons. 

By signing up to CF Clinical Trial Connect, you’ll receive notifications about new clinical trial opportunities based on things like your CF gene variant and age.

Find out more about CF Clinical Trial Connect

Register for CF Clinical Trial Connect

You can also find a list of UK clinical trials, including trials for people not able to take modulators, on our Trials Tracker. 

All clinical trials will have ‘inclusion’ and ‘exclusion’ criteria, a set of requirements that you must meet to take part. These can include:

• your age
• your CF genotype
• your FEV1 status (lung function)
• whether you are pregnant or planning to start a family
• your current treatments 
• what other medical conditions you may have. 

You can find a summary of the inclusion and exclusion criteria for specific trials on the Trials Tracker, if the trial is listed there. You can also ask your CF care team or the CTAP trial coordinator. 

It is important that clinical trials have a diverse representation of participants that reflect the entire CF community. This is because our understanding of how effective and safe a new treatment is comes from the people who take part in clinical trials. If you would like support to take part in a trial, this is available. Please contact the CTAP team to talk more about this. 

Read more about our Diversity in Trials project.

If there are no trials near you, try widening your search area or contact CTAP. You may have the option to travel to a different CF centre to take part in a trial. Some trials may be able to reimburse you for travel and accommodation costs if you have to travel a long way. 

To stay up to date with the latest trials and involvement opportunities, sign up to our Clinical Trials and Involvement newsletter.

For most trials, you will need to be screened before the researchers decide whether to include you in the trial. 

Sometimes you and your CF team can easily tell if you can take part in a trial. At other times, you may not know until you go for a screening visit, after you’ve consented to take part in the trial. This will usually be at the hospital or CF centre where the trial is taking place. This may or may not be your usual CF care centre. Your health and medical history will be checked against the trials eligibility criteria. 

Sometimes people are told they cannot currently take part in the trial. This can be for a variety of reasons such as your FEV1 being too high or too low. Being told you cannot take part in a clinical trial can understandably be very disappointing. It’s important that clinical trials have strict criteria in place to make sure the trial is as safe and accurate as possible.

Even if you don’t meet the criteria at the start of a trial, it might not necessarily exclude you from taking part in the trial at a later date, or from taking part in a different trial. Your health might change, or other trials will have different criteria.

Keep an eye on our Trials Tracker to find lots of clinical trials currently recruiting in the UK.