This Mother’s Day, we wanted to share a story from the cystic fibrosis (CF) community, just one of many unique experiences of motherhood, family and life with cystic fibrosis. Alison writes about her family, and how her CF is part of their ‘normal’.
Our Trial Coordinators play a key part in supporting participation in CF clinical trials. We spoke to Juneka Begum, Trial Coordinator in Birmingham, about her role and how things have adapated in the pandemic.
We aim to provide the best level of service to our beneficiaries and supporters. It is important that you let us know if we have fallen short of your expectations.
Emma was due to take part in her third Great Strides 65km in 2020, but when the event was cancelled due to coronavirus (COVID-19), she found a virtual way to complete the walk. Emma has two sons, including Chester (age five), who has cystic fibrosis (CF). Here she shares her experience and her tips for people joining our new virtual event, Great Strides, My Way.
