New precision medicine tezacaftor-ivacaftor has completed clinical trials, but before any decisions on its use in the NHS are made, it must be granted a license for sale by the European Medicines Agency, which is due to be rubberstamped this year. We are launching a new survey to help us represent you as the case for using the drug in the NHS is evaluated by health watchdogs. Nick Medhurst, Head of Policy at the Cystic Fibrosis Trust, explains how the information you share will help us to fight for you.
January may be over but being a superhero is more than just a New Year’s resolution! To get you inspired, we caught up with Courageous Crusader Janet, who told us of her vertical adventure and what being a part of Team CF Superheroes means to her.
Coronavirus (COVID-19) may have cancelled our usual events, but that hasn't stopped our Team CF runners. This September, join us for our first ever virtual Running Festival and help us raise vital funds to fight cystic fibrosis (CF). Steven and Donna have both taken on virtual running challenges recently. Here, they share their reasons for running and tips on how to keep motivated, fundraise and have fun!
Callum is a 28-year-old apprentice tattoo artist from Prestwick, Scotland and was one of six people to be granted a Helen Barrett Bright Ideas Award this year to pay for equipment to help him pursue his dream career. We caught up with Callum to find out what inspired him to become a tattoo artist, how taking on tattooing full time has helped his CF and what his plans are for the future. He also gave us an exclusive on a creative fundraising idea he has (hint: it’s not a bungee jump!).
On this day thirty years ago, two scientific reports were published describing the CFTR gene, the gene that causes cystic fibrosis (CF). Its discovery led to advances in the care and treatment of people with CF, but some of its secrets are still to be uncovered. Here are five things that are happening as a result of those important reports.
