To coincide with NHSBT’s Organ Donation Week, the Trust is launching a survey to understand more about people’s experiences of the transplant referral process, to help make it a better experience for people with cystic fibrosis (CF), their families and carers.
Appealing your Personal Independence Payment (PIP) decision can be a tricky process. We spoke to a mum of a young person with cystic fibrosis (CF), who asked to remain anonymous, and Ellie, a young full-time student with CF, both of whom successfully won their appeals. Here they give their advice on how you can prepare for your hearing…
This World Antibiotics Awareness Week, we bring you a list of four programmes underway to improve treatments for lung infections in cystic fibrosis (CF).
AS NICE reveals its new guidelines for cystic fibrosis (CF) management and diagnosis, and looks to the future of home monitoring and telemedicine, the Cystic Fibrosis Trust’s Head of Policy Nick Medhurst takes a look at how the Trust is already exploring the potential of technology through SmartCareCF.
At this year’s UK Cystic Fibrosis Conference, we announced that we would be asking the community to share their ideas for our brand-new five-year research strategy. Here Dr Janet Allen, author of these strategies, looks back at where we’ve come from, and ahead to where you can help us go next.
