New Cystic Fibrosis Trust survey data launching as part of Cystic Fibrosis Week (9-15 June) reveals the isolation of living with the lifelong and life-limiting condition without a cure
David Ramsden, our Chief Executive, introduces CF Week 2025 (9-15 June), and the challenges for people with CF that come from not being able to meet one another in person.
Feeling lonely and experiencing social isolation can be a challenge for people with CF and their families, because of the medical demands of the condition, frequent hospital trips, and the need to avoid contact with other people with CF due to cross-infection risks. Here, Dr Anna Shipton, a clinical psychologist in the adult CF service at Frimley Health NHS Foundation Trust, shares her tips for dealing with these feelings.
With just over a week to go until Wear Yellow Day (13 June), we're sharing the story of Michaela and her son Mason, 3, who has cystic fibrosis. Michaela will be showing her support this Wear Yellow Day by organising fundraisers at Fulham Football Club, where her dad works, as well as at a local school, nursery, and pub. We chatted to Michaela about how fundraising makes a huge difference to families such as theirs.
Our volunteers help us improve lives affected by cystic fibrosis while gaining valuable experience through flexible roles. We'd like to say a huge thank you to everyone who volunteers with us!
Megan is mum to Ruadhán, who is 7 months old and has cystic fibrosis (CF). She recently ran the Belfast Relay Marathon to raise money for Cystic Fibrosis Trust, crossing the finish line with Ruadhán in her arms. “He motivates and inspires me every day to be the best mum for him,” Megan told us.
We support life sciences partnerships by providing high-quality real-world evidence, expert analysis, and ethical oversight to drive research and innovation in CF care. Collaborate with the UK CF Registry to accelerate advancements in cystic fibrosis treatment and outcomes.
Today we’re announcing £1.3 million of new research funding focusing on your research priorities, including innovative ways to treat NTM lung infections and early studies on better ways to treat CF diabetes.
