Search

Jade's top tips on dealing with an inpatient hospital stay

Information Officer, Jade Ashton, shares her top tips on managing an inpatient hospital stay as she reflects on her first admission.

UK Cystic Fibrosis Registry

The UK CF Registry is a secure centralised database, sponsored and managed by Cystic Fibrosis Trust, that records vital data on people with cystic fibrosis (CF).

Jon’s story: Kaftrio, side effects and mental health

After speaking to Jon’s wife Hannah about relationships and CF, we sat down with Jon to hear more about his CF, his experience of Kaftrio, and his hopes for the future. 

People living in poverty are twice as likely to end up in hospital fighting for breath - Cystic Fibrosis Trust response to new report

According to a new report, Breathing Unequal – examining inequalities and lung conditions, published today by Asthma and Lung UK, living in poverty with a lung condition doubles the risk of an emergency hospital admission.

"I have Kaftrio to thank massively for allowing me to live a relatively ‘normal’ life" Cerys's story

Cerys, who spent the week doing work experience with us, speaks about growing up with CF, her experience of Kaftrio, life at university and her plans for the future.

“He’s just a happy boy who’s always got a smile for everyone, including strangers” First time Dad Harry shares Kenny’s story

We spoke with Harry, father to nine-month-old Kenny who has cystic fibrosis, about Kenny’s life with CF, navigating CF as a new parent, and advice for other families.

Highlights from the European CF Society conference

In June over 2,000 CF researchers, doctors and representatives from CF teams, from across Europe gathered at a conference centre in Vienna for a busy 3 days discussing the latest news in cystic fibrosis. Here we bring you some highlights from the event.

‘I want to continue performing and doing work that lasts a long time, and now, thanks to Kaftrio, I can.’ Martin’s story

We speak to 34-year-old performance artist Martin O'Brien to learn more about his latest residency at the Whitechapel Gallery, his career journey, the inspiration behind his work, and his life with CF.

Helpline

Our confidential Helpline supports anyone affected by cystic fibrosis (CF). Contact us by phone, email, WhatsApp, or social media – we’re here to help.