You can now find summaries of recently-published clinical trial results on our Trials Tracker. In this blog, we share more about how we’re making trial results more accessible and why it's important.
As the Trust marks its 60th anniversary year, Robyn, who has CF, will be celebrating her first birthday with an arts and crafts party with all her family. “My hope for my daughter’s future is that she goes out and takes the world by storm and shows everyone that she is more than her condition,” mum Laya tells us.
Professor Jane Davies, Paediatric Respiratory Medicine and Experimental Medicine at Imperial College London and an Honorary Consultant at the Royal Brompton Hospital has been awarded an OBE for services to people with cystic fibrosis.
In this blog, we talk about the work that the Trust is doing to ensure policy makers understand how important Creon is to the health of people with CF, and that all steps are being taken to address and reduce the impact of shortages.
For 60 years we've worked together, sharing moments of frustration, despair and hope, overcoming challenges, and celebrating breakthroughs. Always learning and moving forward. This CF Week, we’re reflecting on how far we’ve come and looking to the future. Because we won’t stop until CF does.
Thiago was diagnosed with CF at five weeks. Now eight months old, his mum Shanique and dad Rico reflect on their journey with cystic fibrosis and what they hopes the future looks like for her little boy.
We chatted to Tammy, 44, from York, about her home education business – and the confidence boost winning a Helen Barrett Bright Idea Award has given her