Cendl Xanthe is the Trials Accelerator Early Phase Trials Co-ordinator at the All Wales Adult Cystic Fibrosis Centre in Cardiff. She also sits on the Steering Committee of the QuestionCF Priority Refresh project. We caught up with Cendl to chat QuestionCF and the impact it will have on future research studies.
Fiona’s daughter Zara was diagnosed with cystic fibrosis (CF) at just 18 days old. Here, Fiona tells us about family life with CF, her hopes for Zara’s future, and why Cystic Fibrosis Trust’s vision that everybody with CF should live a life unlimited means everything to them.
The Cystic Fibrosis Trust is calling on the Government to urgently update the prescription charge exemption list to include people with cystic fibrosis (CF), with a debate happening today in Westminster Hall, tabled by Paul Maynard MP.
This is an exciting opportunity to join a dynamic and passionate team within the Data and Quality Improvement (QI) Directorate at the Cystic Fibrosis Trust.
Adults over the age of 50 or with an underlying health condition are being urged to sign up to the PANORAMIC trial, a world-first COVID-19 study that is providing life-saving antivirals to thousands of people.