After months of training in winter mornings and dark evenings, running season officially kicks off with the Bath Half Marathon this Sunday! As you load up on carbs and get in the zone, have a read of Team CF Superhero Nim's running story - of how her grit, determination and madness got her into running, how it’s helped her mental and physical health of living with CF, and how grateful she is to superheroes like you for supporting the Cystic Fibrosis Trust.
In our latest blog about how the coronavirus (COVID-19) outbreak is affecting the cystic fibrosis (CF) community, Nikita writes about being diagnosed with COVID-19, keeping a positive attitude while recovering from the virus and the resilience of the CF community.
Last week the National Institute for Health Research (NIHR) published a call for research applications based on the priorities that the cystic fibrosis (CF) community identified as important to them. So which vital topics in CF research (as identified by you) has the NIHR agreed to fund, and how you can continue to get involved in shaping future research? Read on to find out.
As the National Institute for Health and Care Excellence (NICE) opts not to recommend the gene-specific medicine Orkambi to NHS England, while acknowledging the clinical benefits of the drug, the Cystic Fibrosis Trust has put forward a solution that could speed up access and evaluation.
Before Mallory Smith died age 25, she asked her mum Diane to publish her diaries, going back to her teens. When Diane looked through them after Mallory’s death she discovered a rich internal life that her daughter had recorded between hospital stays and periods of declining health. Diane has published Mallory’s diaries in a new book, ‘Salt In My Soul, An Unfinished Life’. We spoke to Diane, herself no stranger to writing about CF, about her daughter’s inspirational life and what it means to have her story published.
