The Cystic Fibrosis Trust has today expressed dismay after discussions to make ground-breaking new precision medicines available on the NHS appear to be stalling.
One of the major elements driving the Cystic Fibrosis Trust’s Clinical Trials Accelerator Platform is Patient & Public Involvement – or PPI for short. This means putting the community at the heart of our commitment to supporting access to clinical trials. For CF Week, PPI Coordinator Lorna Allen brings you an update on how the community is helping develop this major body of work.
A new treatment combining ivacaftor and tezacaftor could improve lung function and cut outbreaks of infection according to two Phase 3 studies published by Vertex Pharmaceuticals.
Emma Lake, Community Manager at the Trust, tells us how she's getting on top of her health and taking up a long-lost hobby by joining 24 Hours for CF this summer.
In our second blog about how the coronavirus (COVID-19) outbreak is affecting the cystic fibrosis (CF) community, Poppy shares how she is using this time to keep busy, stay fit and look after her mental health.
