Taking part in clinical trials isn’t just for adults – teens, children and even babies can take part in trials too. Our latest resources aim to introduce children and young people with cystic fibrosis (CF) to clinical trials, providing parents and trial coordinators with support to explain what trials are, what taking part in one might involve and how getting involved could help other children like them too.
Intrepid supporter aims to become the fifth woman to ski solo to the South Pole, and the first to ski back again, raising vital funds for the Cystic Fibrosis Trust.
On Friday, the Health and Social Care Committee announced an inquiry into the availability of Orkambi and other cystic fibrosis medicines on the NHS, which could open up discussions between Vertex, NHS England and NICE to public scrutiny. Following the announcement, we asked Policy and Evidence Manager Anna Evans to explain a bit of the background to the committee and what comes next. *Edited on 30 November 2018*
The Cystic Fibrosis Trust has awarded Clinical Excellence and Innovation Awards to five talented cystic fibrosis (CF) specialists for the second year running.
Today Chris Skidmore, Minister for Universities, Science, Research and Innovation, announced a £30 million award to the University of Cambridge to support the new Cambridge Heart and Lung Research Institute (HLRI), which will host the Trust’s Innovation Hub.
You may have seen in the news coverage of the OK! Magazine feature on ex-Hollyoaks actress and Celebrity Big Brother star Stephanie Davis talking about how her unborn child may be born with cystic fibrosis. We’d like to take the opportunity to correct some of the errors in the article and address some of the misconceptions this has raised.
Amy has cystic fibrosis (CF) and her daughter Evie, aged two and a half, has an inconclusive diagnosis. This means that she has some of the symptoms of CF, but tests cannot prove that she definitely has the condition. Cystic Fibrosis Trust met with Amy to talk about Evie's inconclusive diagnosis and what the experience has been like for her family.
