The Cystic Fibrosis Trust has awarded Clinical Excellence and Innovation Awards to five talented cystic fibrosis (CF) specialists for the second year running.
Today Chris Skidmore, Minister for Universities, Science, Research and Innovation, announced a £30 million award to the University of Cambridge to support the new Cambridge Heart and Lung Research Institute (HLRI), which will host the Trust’s Innovation Hub.
You may have seen in the news coverage of the OK! Magazine feature on ex-Hollyoaks actress and Celebrity Big Brother star Stephanie Davis talking about how her unborn child may be born with cystic fibrosis. We’d like to take the opportunity to correct some of the errors in the article and address some of the misconceptions this has raised.
Amy has cystic fibrosis (CF) and her daughter Evie, aged two and a half, has an inconclusive diagnosis. This means that she has some of the symptoms of CF, but tests cannot prove that she definitely has the condition. Cystic Fibrosis Trust met with Amy to talk about Evie's inconclusive diagnosis and what the experience has been like for her family.
To coincide with NHSBT’s Organ Donation Week, the Trust is launching a survey to understand more about people’s experiences of the transplant referral process, to help make it a better experience for people with cystic fibrosis (CF), their families and carers.
Appealing your Personal Independence Payment (PIP) decision can be a tricky process. We spoke to a mum of a young person with cystic fibrosis (CF), who asked to remain anonymous, and Ellie, a young full-time student with CF, both of whom successfully won their appeals. Here they give their advice on how you can prepare for your hearing…
