Five-year-old Jakub, who has cystic fibrosis (CF), proved a lucky charm when he spent a day as club mascot for Northampton Town FC, inspiring the League One side to a 3–1 win over Southend!
Alice Peterson’s new novel, A Song for Tomorrow, is inspired by the life of Alice Martineau, a singer with cystic fibrosis who died in 2003. Alice spoke to the Cystic Fibrosis Trust about her experiences writing the novel, which is published today, and finding out more about cystic fibrosis.
It has been a tough week for the cystic fibrosis community. There has been a flurry of intense activity, followed by numerous letters and press releases that have led many to the – understandable – conclusion that this is the end of the road for negotiations. Trust Chief Executive David Ramsden shares his assessment of where things stand.
Inspired by the Herculean efforts of Josh Llewellyn-Jones, Anna Bennett and a group of family and friends took part in the 24 Hours for CF challenge this August, raising over £3,500 for the Cystic Fibrosis Trust. Here, she tells us all about her incredible exercise journey, and how it helped her after her daughter's diagnosis.
