Jeremy Hunt, Secretary of State for Health and Social Care today called on drug manufacturer Vertex to be transparent on its pricing for the precision medicine Orkambi, and agreed to explore avenues for ensuring quicker access to medicine, in a session of oral questions on health, in Parliament today.
It might be two and a half weeks until Christmas, but we know that many of you are planning for the new year, and even thinking about your resolutions. That's why, over the next couple of months, we'll be giving you five reasons to join one of our new and improved Great Strides events in the Peak District, Surrey Hills, Brecon Beacons and, this week, the Yorkshire Dales! Read on for tips on incentivising your fellow walkers with some local dialect, a taste of the breath-taking landmarks you'll be viewing on your walk and an exact calculation of how much cheese you'll be able to consume after completing this epic 65km route.
Mandy is taking part in her third Great Strides in 2019. After volunteering as a marshal in her first year, she was inspired to take part in 2017, and is now pulling together a team for the Brecon Beacons walk in June. Mandy tells us about her motivations for taking part in Great Strides, her top training tips, and how you can have a “fabulous time” walking across 40 miles of Welsh countryside.
As the Trust unveils the second round of Clinical Excellence and Innovation Awards, supporting ground-breaking projects in clinical care, we hear from PhD student Helen Douglas, who is part of the Project Fizzyo team supported through an award to Great Ormond Street Hospital.
We know that the coronavirus (COVID-19) pandemic has meant changes to care for people with cystic fibrosis (CF). At the Cystic Fibrosis Trust, we’re negotiating behind the scenes to make it easier for you to monitor your health remotely. While these negotiations are ongoing, we wanted to update you on how researchers within the Trust’s latest digital health research programme ‘Project Breathe’ are responding to COVID-19, to help you monitor your health at home.
