We're delighted to have received confirmation from the expedition team Jagged Globe that Nick Talbot has successfully become the first person with cystic fibrosis to reach the top of Mount Everest.
The number of people living with cystic fibrosis (CF) in the UK has risen to 10,500 for the first time, according to new data from the UK CF Registry announced by the Cystic Fibrosis Trust today.
When Pippa Kent received her double-lung transplant last year, she was also given a list of foods that she could no longer eat because of the new drugs she was taking to keep her lungs working. Taking these new restrictions in her stride, Pippa is raising money for her cook book, ‘Now What Can I Eat?’ which will be full of recipes suitable for people taking immunosuppressant drugs. Read on to find out more.
We met with artist Kate Hughes at her new exhibition ‘Island Collaborations’, an art project exploring the environment of people with cystic fibrosis (CF) staying on Foulis Ward at Royal Brompton Hospital in London. Kate, who has CF, collaborated with other people who had stayed on Foulis Ward to create beautiful images, sounds and animations that represent a stay in a typical room on the ward.
After a significant few weeks David Ramsden, Chief Executive at the Cystic Fibrosis Trust, discusses the latest developments in life-saving drugs and how you can help to keep cystic fibrosis (CF) at the top of the political agenda.
Find out more about how our helpline deals with calls about cystic fibrosis (CF) and bereavement from Becky Kilgariff, Support Services Manager at the Cystic Fibrosis Trust.
Northern Ireland has joined England and Wales in securing a deal for the life-saving medication Kaftrio to be available to eligible people with cystic fibrosis (CF) on the day the drug receives its European licence.
The Department of Health in Northern Ireland has today confirmed its intention to complete a deal with Vertex Pharmaceuticals to make life-saving drugs Orkambi and Symkevi available to eligible people with cystic fibrosis (CF) living in Northern Ireland.
Following a major step forward in access to Kaftrio, a genotype-specific treatment for cystic fibrosis (CF), the Cystic Fibrosis Trust’s Director of Policy, Programmes, and Support, Dr Keith Brownlee, sets out the Trust’s determination to ensure the best care, treatment and support for everyone with cystic fibrosis.
