Welcome to CF7. Each Friday we share seven pieces of cystic fibrosis (CF) news, resources and community stories from the week. This is a new blog that we are trying out so we’d love to hear your thoughts.
Welcome to CF7. Each Friday we’ll share seven pieces of cystic fibrosis (CF) news, resources and community stories from the week. This is a new blog that we are trying out so we’d love to hear your thoughts.
Emma Lake, Community Manager at Cystic Fibrosis Trust, who lives with cystic fibrosis (CF), takes a look at what people with CF and their families thought of how the condition was represented in Casualty, from covering clinical trials to unrealistic lung function.
People with CF are vulnerable to lung infections like Pseudomonas and Mycobacterium abscessus. Read about some of the well-known bugs, and find out what we’re doing to combat them.
On Monday, the Daily Express launched their Christmas fundraising appeal in partnership with Cystic Fibrosis Trust. The Daily Express and their readers have been at the heart of the fight for access to precision medicines, along with Carlie Pleasant, a young mum with cystic fibrosis (CF), who wrote an inspiring weekly diary in the Daily Express as well as interviewed Health Secretary Matt Hancock and Vertex CEO Jeff Leiden. She shares with us what life with CF is like at Christmas and how the Trust has supported her in 'moments of need'.
