Recent research has shown that 86% of the public don’t know that those with CF can’t meet each other in person due to the risk of passing on potentially deadly infections. And over two thirds of people are unaware that people with CF may have to take up to 60 pills a day just to stay healthy. This CF Week, we want to increase understanding and show what day-to-day life with CF is really like. CF mum and Trust supporter Lizzy, whose son Isaac has CF, blogs about the importance of raising awareness of an invisible condition like CF – and shares some of the #CFTruths she wishes people could know.
Over the course of this year’s CF Week - taking place from 13 to 19 June - we will be sharing inspiring stories from across the CF community. Today’s story comes from CF researcher Alice Collins.
RNID and Cystic Fibrosis Trust have teamed up to fund a vital research project to prevent hearing loss caused by a commonly prescribed antibiotic. The £210,000 research project will run for three years.
A big thank you and well done to Cystic Fibrosis Trust ambassador Roger Black MBE, who appeared on Celebrity Pointless at the weekend to raise money and awareness for the Trust. We caught up with Roger to hear more about his support of the Trust, raising awareness of CF, and his guilty pleasure!
Today in the House of Commons, the Chancellor of the Exchequer, Rishi Sunak, set out measures to address the rising cost of living facing people across the UK, including those with CF.
Over the course of this year’s CF Week - taking place from 13 to 19 June - we will be sharing stories from across the CF community about life with CF: the ups, the downs and everything in between. Here, Kareem, who has CF, and his sister Yasmin, sat down to have a chat with us about dealing with the condition as a family, being diagnosed in your teens, and showing a true representation of a diverse CF community.
Coronavirus disease 2019 (COVID-19) which is caused by the virus SARS-CoV-2 has resulted in an ongoing global pandemic. It is unclear whether the relatively low number of reported cases of COVID-19 in people with CF (pwCF) is due to enhanced infection prevention practices or whether pwCF have protective genetic/immune factors. This study aims to prospectively assess the proportion of pwCF, including both adults and children with CF who have evidence of SARS-CoV-2 antibodies over a two-year period. This study will also examine whether pwCF who have antibodies for SARS-CoV-2 have a different clinical presentation and what impact this has on...
Over the course of this year’s CF Week – taking place from 13 to 19 June – we will be sharing stories from across the CF community about life with CF: the ups, the downs and everything in between. Here, Dom, Helpline Officer at the Trust, tells us about the impact CF has on his mental health and how he manages these challenges.
