Everyone at the Trust was very sorry to hear news of the death of Mary Heeley, who passed away last month. Mary and her husband, Dr Anthony Heeley, were the pioneers behind the world’s first regional screening programme for cystic fibrosis, established in 1980 in East Anglia. This innovative model was later adopted across this UK and has made a huge difference to people with CF and their families, changing the way CF is understood and cared for forever.
HRH The Duchess of Gloucester officially opened the Heart and Lung Research Institute (HLRI) on Monday 11 July, which Cystic Fibrosis Trust have provided support to.
We're delighted to launch our new online forum for the CF community. It’s a safe space to seek information, access support, and chat with others who know what you’re going through. Here, our Helpline Manager Matthew Delooze shares an insight into what you can expect from your online community and how we’ve worked with people with CF to create it.
