The Cystic Fibrosis Trust has loads of ways to support you. Hear from James about how he used one of our holiday grants to create lasting memories with his family, and find out how you can apply.
Becky Kilgariff, one of three passionate employees who answers calls and emails for the Cystic Fibrosis Trust helpline, reveals the top five things that she has learned from people in the cystic fibrosis (CF) community who have asked for her support.
To help raise awareness of organ donation week, we’re reporting on a new piece of research that may help to guide clinicians on when to begin talking about lung transplant with people with cystic fibrosis (CF). The work was conducted by Professor Mihaela van der Schaar at The Alan Turing Institute and co-author PhD student Ahmed Alaa at UCLA using data from the UK CF Registry.
Jeremy Hunt, Secretary of State for Health and Social Care today called on drug manufacturer Vertex to be transparent on its pricing for the precision medicine Orkambi, and agreed to explore avenues for ensuring quicker access to medicine, in a session of oral questions on health, in Parliament today.
It might be two and a half weeks until Christmas, but we know that many of you are planning for the new year, and even thinking about your resolutions. That's why, over the next couple of months, we'll be giving you five reasons to join one of our new and improved Great Strides events in the Peak District, Surrey Hills, Brecon Beacons and, this week, the Yorkshire Dales! Read on for tips on incentivising your fellow walkers with some local dialect, a taste of the breath-taking landmarks you'll be viewing on your walk and an exact calculation of how much cheese you'll be able to consume after completing this epic 65km route.
