Find out more about how our helpline deals with calls about cystic fibrosis (CF) and bereavement from Becky Kilgariff, Support Services Manager at the Cystic Fibrosis Trust.
Northern Ireland has joined England and Wales in securing a deal for the life-saving medication Kaftrio to be available to eligible people with cystic fibrosis (CF) on the day the drug receives its European licence.
The Department of Health in Northern Ireland has today confirmed its intention to complete a deal with Vertex Pharmaceuticals to make life-saving drugs Orkambi and Symkevi available to eligible people with cystic fibrosis (CF) living in Northern Ireland.
Following a major step forward in access to Kaftrio, a genotype-specific treatment for cystic fibrosis (CF), the Cystic Fibrosis Trust’s Director of Policy, Programmes, and Support, Dr Keith Brownlee, sets out the Trust’s determination to ensure the best care, treatment and support for everyone with cystic fibrosis.
After months of training in winter mornings and dark evenings, running season officially kicks off with the Bath Half Marathon this Sunday! As you load up on carbs and get in the zone, have a read of Team CF Superhero Nim's running story - of how her grit, determination and madness got her into running, how it’s helped her mental and physical health of living with CF, and how grateful she is to superheroes like you for supporting the Cystic Fibrosis Trust.
In our latest blog about how the coronavirus (COVID-19) outbreak is affecting the cystic fibrosis (CF) community, Nikita writes about being diagnosed with COVID-19, keeping a positive attitude while recovering from the virus and the resilience of the CF community.
Last week the National Institute for Health Research (NIHR) published a call for research applications based on the priorities that the cystic fibrosis (CF) community identified as important to them. So which vital topics in CF research (as identified by you) has the NIHR agreed to fund, and how you can continue to get involved in shaping future research? Read on to find out.
