Blog -
Grace Paget, Public Affairs Officer
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Published Date:
Earlier this month, Trust Public Affairs Officer Grace attended a parliamentary drop-in session to engage MPs in our campaign for free prescriptions for everyone with CF.
David Ramsden, Chief Executive of Cystic Fibrosis Trust, reflects on the 2023 Registry Annual Data Report and recent Annual Meeting of the UK CF Registry.
Find out how you can get involved with Cystic Fibrosis Trust and help to fight for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition.
People with cystic fibrosis are fearing the financial cost of the coming winter months, reveal insights from Cystic Fibrosis Trusts’ frontline support services.
At Cystic Fibrosis Trust, we fund lots of amazing research – but how do we decide which projects to fund? That’s where our Research Grants Review Committee comes in, also known as the RGRC for short. The RGRC is a group of CF clinicians, researchers and people from the CF community who review applications for funding from the Trust and our partners. To find out more about the importance of CF community representation on the RGRC, we spoke to a few current members of the RGRC about their experiences.