This study is a two arm, multicentre parallel group, randomised controlled trial comparing ten days of intravenous therapy to three months of oral therapy in Cystic Fibrosis patients whose lungs have become infected with a bacterium called Pseudomonas(P. aeruginosa). 280 patients (children and adults)in total will be randomised, 140 in each arm of the trial. Background and study aims: Cystic fibrosis (CF) is a genetic condition in which the lungs and digestive system become clogged with thick sticky mucus. CF patients are at risk of developing infection in their lungs which can cause health problems. A common cause of infection...
Ethan, 9, who has cystic fibrosis (CF), recently completed his 100th parkrun. Ahead of the big day, we caught up with Ethan and his mum, Fiona, to chat all things running, Ethan’s hopes for the future, and his advice for other young people with CF.
This week is World Antimicrobial Resistance Awareness Week and we’re raising awareness of why preventing and tackling antimicrobial resistance is so important – and how Cystic Fibrosis Trust is funding research to improve lung health for everyone with cystic fibrosis (CF).
For many people, Christmas is the most wonderful time of the year. But for people with CF, the festive season can be the most worrying. Ruth is mum to Lissy, 19, who has cystic fibrosis. She shares their story – and how research could make a difference for everyone with cystic fibrosis.
Care is changing rapidly in CF. In this blog, Jana Witt, Clinical Quality Improvement Manager at Cystic Fibrosis Trust, reflects on insights from our first ever CF workforce survey of more than 150 CF professionals.
Earlier this year, Dr Mike Gray, from Newcastle, and Dr Carlos Flores, from Valdivia, Chile, were awarded a Development Award (DA) grant by the Trust. One of the aims of these funding awards is to support researchers to conduct preliminary studies in new areas of CF research. We chatted to them to find out more about the research they’re doing together.
Earlier this year, our Trustee Sophie Pierce became the first person with cystic fibrosis to ever row across an ocean. We caught up with Sophie to hear more about this incredible feat.
More than four in 10 people with CF will develop CF diabetes. CF diabetes is a distinct form of diabetes unique to people with cystic fibrosis. The signs and symptoms of CF diabetes share similarities to both Type 1 and Type 2 diabetes, but the underlying cause is different. For #notjustlungs week, we’re sharing some of your experiences of receiving a diagnosis of CF diabetes, how it impacts your day to day lives, and your wishes for research into the condition.
In this blog, Lorna Allen, Senior Involvement Manager at Cystic Fibrosis Trust, shares more about an exciting new project which aims to put the lived experience of people with CF at the heart of future research. “We hope the COS-CF project will maintain the community’s message ‘it’s not just lungs’ in all future CF research,” Lorna says.
