Earlier this year, Dr Mike Gray, from Newcastle, and Dr Carlos Flores, from Valdivia, Chile, were awarded a Development Award (DA) grant by the Trust. One of the aims of these funding awards is to support researchers to conduct preliminary studies in new areas of CF research. We chatted to them to find out more about the research they’re doing together.
Earlier this year, our Trustee Sophie Pierce became the first person with cystic fibrosis to ever row across an ocean. We caught up with Sophie to hear more about this incredible feat.
More than four in 10 people with CF will develop CF diabetes. CF diabetes is a distinct form of diabetes unique to people with cystic fibrosis. The signs and symptoms of CF diabetes share similarities to both Type 1 and Type 2 diabetes, but the underlying cause is different. For #notjustlungs week, we’re sharing some of your experiences of receiving a diagnosis of CF diabetes, how it impacts your day to day lives, and your wishes for research into the condition.
In this blog, Lorna Allen, Senior Involvement Manager at Cystic Fibrosis Trust, shares more about an exciting new project which aims to put the lived experience of people with CF at the heart of future research. “We hope the COS-CF project will maintain the community’s message ‘it’s not just lungs’ in all future CF research,” Lorna says.
We need your help in shaping the future of research, care and support for everyone affected by cystic fibrosis. What should Cystic Fibrosis Trust focus on and work towards over the coming years to help achieve a life unlimited?
Cystic fibrosis (CF) is the most common fatal inherited condition in Caucasians, causing recurrent chest infections and premature death due to lung failure. When patients develop chest infections their symptoms usually slowly worsen over the course of several days to weeks. Due to this gradual onset, patients often seek medical attention several days or weeks after symptoms start to worsen. We believe that if we were able to monitor patients more closely we could diagnose and treat chest infections earlier and consequently improve health outcomes. The HOME-CF study aims to investigate whether home monitoring is beneficial for adults with CF...
This week (3–9 November), we'll be shining a spotlight on CF and the additional diseases and complications that can come with it, from gut symptoms to diabetes – showing CF is not just the lungs.
