"This research from Social Security Scotland is disappointing, but not surprising. Everyone should be able to access the support they need without stigma, but we know that there continues to be negative stereotypes linked to those seeking the financial help they need.
"Due to the rising cost of living, a family with CF can expect to pay more than £7,000 to remain well. Many people with CF are worse off than ever before and face disproportionate obstacles when accessing insurance and benefits, coping with prescription charges, and finding suitable housing, which leaves families in an especially vulnerable position.
"We are here for everyone with CF, but we need governments to do more to support those with life-long, life limiting conditions. If you need support for anything to do with CF, call 0300 373 1000 or 020 3795 2184, or email
[email protected]."
