Blog -
Becky Kilgariff, Head of Information, Support and Programmes
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Published Date:
As we mark a year since the first shielding advice was announced, Becky Kilgariff, our Head of Information, Support and Programmes, takes a moment to reflect on how the pandemic has affected people with cystic fibrosis (CF). Thanks to your incredible support, the Trust has provided information and help to the CF community throughout this difficult year. As we approach the end of another period of shielding, we recognise there may be mixed emotions including some anxiety and uncertainty so Becky also gives an update on our plans to ensure that you continue to have the support you need.
To celebrate World Social Work Day, we’re spotlighting the work we are doing at the Trust to advocate for this vital role. Over the last two years, our Quality Improvement (QI) team has been working hard to provide cystic fibrosis (CF) centres with tools that help ensure people with CF have access to the best possible support. Here we share some of the outcomes from recent QI projects, and what we are doing to improve the quality of care for the CF community.
This Mother’s Day, we wanted to share a story from the cystic fibrosis (CF) community, just one of many unique experiences of motherhood, family and life with cystic fibrosis. Alison writes about her family, and how her CF is part of their ‘normal’.
Our Trial Coordinators play a key part in supporting participation in CF clinical trials. We spoke to Juneka Begum, Trial Coordinator in Birmingham, about her role and how things have adapated in the pandemic.
