Today the Government announced some new measures to speed up access to medicines, in response to the Accelerated Access Review report. We asked Anna Evans, Policy Adviser at Cystic Fibrosis Trust, to explore what today’s news may mean for people with cystic fibrosis.
Dr Samantha Phillips, co-chair of the CF psychology and social work committee, writes an open letter on behalf of the committee to people with cystic fibrosis (CF) about how they can manage their anxiety around coronavirus (COVID-19) during this difficult time.
When Alan Miller died in 2018, £50,000 of his estate was donated to Cystic Fibrosis Trust, inspired by his friendship with 11-year-old Edith, a young girl with cystic fibrosis (CF), whose family he became close to during his time volunteering on Brownsea Island.
In Northern Ireland a scheme co-funded by the Cystic Fibrosis Trust has trained advisors at Advice Space (formerly Citizens Advice Belfast) to offer specialist support to people living with cystic fibrosis. As part of CF Week 2019, Margaret, a specialist CF social worker from City Hospital, Belfast, and some of those who have benefitted from the service, like 28-year-old Kerry, share their experiences of navigating the health and benefits system with CF, and the impact this scheme has had.