Take a look at the answers to some of the questions posed on our online tool Slido during UKCFC 2019 that our presenters didn't have time to answer on the day.
A global study supported by the Cystic Fibrosis Trust, as part of the Global Registry Harmonization Group, made up of CF specialists from around the world and including the Cystic Fibrosis Foundation has revealed that children with cystic fibrosis (CF) who do not have pre-existing severe lung damage experience mild or asymptomatic illness when infected with coronavirus (COVID-19).
A report published by the Trust today highlights the vital potential of gene editing for new treatments that tackle the cause of cystic fibrosis (CF) for everyone with the condition; and co-funding and collaboration could hold the key.
It is with much sadness that we acknowledge the loss of our dear friend and esteemed colleague Lynne Gumery O’Grady, who was a vital and much-loved member of the Trust’s clinical care team for many years. Lynne passed away surrounded by her family on 5 December 2020. We are grateful to some of Lynne’s friends and former colleagues who put together this tribute.
Our Strategy Implementation Board (SIB) are an integral part of how we decide what research to fund at the Trust. Members of the Board include cystic fibrosis (CF) clinicians, laboratory-based researchers and people from the CF community. SIB are meeting online today, to decide which Strategic Research Centre (SRC) proposals should be recommended for funding. We caught up with Board member Aoife, who has CF, to find out what they will be discussing in today’s meeting and why SIB is so important for CF research.
Another national lockdown is back with us, which can be challenging at times. For some people, having a goal to work towards can be really helpful. We spoke to Craig about how taking part in a virtual challenge got him through the first lockdown and why being part of Team CF is so special.
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Anna Evans, Policy and Evidence Manager
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In this access to medicines update, Anna Evans, Policy and Evidence Manager, writes about the latest developments in access to CFTR modulators and the Trust’s work with the NHS and Vertex to ensure people across the UK can access the drugs they need.
Our latest CF LIVE event on physiotherapy and exercise generated some great discussions on how people are staying active through lockdown. Take a look at some of the brilliant suggestions made by our panel of experts and the cystic fibrosis (CF) community on what support is available to warm you up through these winter months!
Today is International Day of Women and Girls in Science – a day to celebrate the achievements of women in science and shine a light on role models that women and girls can aspire to. We caught up with Dr Gwyneth Davies, researcher and paediatrician at UCL Great Ormond Street Institute of Child Health, on how she started out in cystic fibrosis (CF) research, her current work in designing clinical trials and her advice to girls and women thinking about a career in science.
