Every young person with cystic fibrosis (CF) has a story to tell, but how can we help them tell those stories together and overcome the barrier of cross-infection? Bahar, Digital Youth Outreach Officer at the Cystic Fibrosis Trust, takes a look at how an innovative story-telling workshop, run by On Our Radar, helped a group of young people living with CF found friendship, understanding and confidence through storytelling.
This year has seen some important steps for our campaign for access to medicines, including a day of protest at all four UK government sites. Now as 2017 draws to a close, Public Affairs Manager Lynsey Beswick presents a final round-up of the work the Trust and the community is doing to stop the clock on cystic fibrosis (CF).
You might have heard about B. cepacia from the new film 'Five Feet Apart,' or you might have B. cepacia yourself or know someone who does and be interested to learn more about the bug and the work we're doing to treat it. Read on for five facts about B. cepacia and the clever work being done by researchers to break down its defences.
People with cystic fibrosis and their families know how serious flu season can be, and most people with CF should get their flu vaccine at their CF centre visits or at their GP. But it’s not just people with CF who need to make sure they get the vaccine. If you know someone who has CF and are eligible for the vaccine, we’d encourage you to act early to get protected and stop the spread of the nasty virus to those who are vulnerable.
We caught up with two researchers working across Europe on our cystic fibrosis-related diabetes (CFRD) Strategic Research Centre (SRC) to find out more about the global reach of their work.