Dr Ann-Marie Golden, an experienced health psychologist, cognitive scientist, therapist and mindfulness facilitator has taken some time to describe the potential benefit of mindfulness as a tool for taking care of your mental wellbeing through the highs and lows of life with cystic fibrosis.
***Updated 20/06/18*** Celebrity supporter Jenny Agutter shares her family’s experience of living in the shadow of cystic fibrosis in a new charity appeal on Radio 4, and highlights the vital research being funded by the Cystic Fibrosis Trust.
Over the coming weeks, we'll be sharing stories from people with CF and their families about how the coronavirus (COVID-19) outbreak is affecting them. In the first of these, Michelle looks back at the lead up to isolation, when she realised a trip to Disneyland wasn't meant to be and how she's staying positive during isolation.
This Father’s Day, on the eve of CF Week, we’re celebrating all of the incredible fathers living with cystic fibrosis, something that not that long ago may have seemed something of an impossible dream. Here, Tim Wotton, who lives with cystic fibrosis and CF-related diabetes, tells us about his journey to becoming a father, and how he deals with the ups and downs of parenthood while handling the heavy burden of CF care.
We spoke to Esther Valentine, mum to 5-year-old Joshua (who has cystic fibrosis), about Community Involvement in clinical trials and her role as a lay member on the Research and Scientific Oversight Board (RSOB).
'Breathe - Life Unlimited' is a world-first music track built using a series of breaths from people living with cystic fibrosis (CF) and celebrities such as James Corden.
In recognition of International Women’s Day, we are celebrating Dr Mary Goodchild, who dedicated her working life to helping those affected by cystic fibrosis (CF) and supported the Cystic Fibrosis Trust to the end with a gift in her will. To commemorate her memory, and to thank Mary for her work and the generous legacy she left to the Trust, we invited some of her family and close colleagues to share their stories of her and her clinical and research career.
