All Beans No Monkeys have reached land after rowing more than 3,000 nautical miles in 44 days, beating 20 other teams to finish the Talisker Atlantic Challenge in sixth place.
Last week, the European Medicines Agency (EMA) granted a licence for Kaftrio, meaning that thousands of people with cystic fibrosis (CF) will soon be benefiting from this life-saving drug. Rebecca Cosgriff, Director of Data and Quality Improvement at the Cystic Fibrosis Trust, writes about the UK CF Registry’s role in securing ongoing access to this and other vital medicines.
As university terms start around the UK, former students Cicely and Nicola, who both have cystic fibrosis (CF), answer questions on their experiences of money, budgeting and getting support from their universities.
Dr Ann-Marie Golden, an experienced health psychologist, cognitive scientist, therapist and mindfulness facilitator has taken some time to describe the potential benefit of mindfulness as a tool for taking care of your mental wellbeing through the highs and lows of life with cystic fibrosis.
***Updated 20/06/18*** Celebrity supporter Jenny Agutter shares her family’s experience of living in the shadow of cystic fibrosis in a new charity appeal on Radio 4, and highlights the vital research being funded by the Cystic Fibrosis Trust.
Over the coming weeks, we'll be sharing stories from people with CF and their families about how the coronavirus (COVID-19) outbreak is affecting them. In the first of these, Michelle looks back at the lead up to isolation, when she realised a trip to Disneyland wasn't meant to be and how she's staying positive during isolation.
This Father’s Day, on the eve of CF Week, we’re celebrating all of the incredible fathers living with cystic fibrosis, something that not that long ago may have seemed something of an impossible dream. Here, Tim Wotton, who lives with cystic fibrosis and CF-related diabetes, tells us about his journey to becoming a father, and how he deals with the ups and downs of parenthood while handling the heavy burden of CF care.
We spoke to Esther Valentine, mum to 5-year-old Joshua (who has cystic fibrosis), about Community Involvement in clinical trials and her role as a lay member on the Research and Scientific Oversight Board (RSOB).
