Mya is 17 years old, lives in Wales and has cystic fibrosis. Find out how she used the Cystic Fibrosis Trust’s health and wellbeing grants to achieve a healthier lifestyle and manage the day-to-day struggles with her condition.
Today Dr Janet Allen, Director of Strategic Innovation at the Trust, was named one of the ’50 Movers and Shakers in BioBusiness 2017’, in innovation platform BioBeat’s annual publication showcasing women leaders in life sciences. To mark the occasion, here Janet looks at the changing face of research, as she gets ready to develop the Trust’s research strategy for the next five years.
Our Youth Advisory Group (YAG) believe it’s important to celebrate the amazing things young people with cystic fibrosis (CF) can do. They are calling on children and young people with CF to share their passions and creative pieces for their latest project ‘More than CF’. Here, YAG member Nicola shares her own creation and explains how you can get involved.
All Beans No Monkeys have reached land after rowing more than 3,000 nautical miles in 44 days, beating 20 other teams to finish the Talisker Atlantic Challenge in sixth place.
Last week, the European Medicines Agency (EMA) granted a licence for Kaftrio, meaning that thousands of people with cystic fibrosis (CF) will soon be benefiting from this life-saving drug. Rebecca Cosgriff, Director of Data and Quality Improvement at the Cystic Fibrosis Trust, writes about the UK CF Registry’s role in securing ongoing access to this and other vital medicines.
As university terms start around the UK, former students Cicely and Nicola, who both have cystic fibrosis (CF), answer questions on their experiences of money, budgeting and getting support from their universities.
