Whether you embrace the winter wonderland or see the world teetering on a frozen precipice like something out of ‘The Day After Tomorrow’, one thing is apparent – Britain as a nation doesn’t always do snow well. But if you’re one of the thousands of working parents with children with CF, and your child has a clinic visit, sometimes you need to show the elements who’s boss. In this extract from her blog in December 2017, Emma Hughes recounts a challenging visit to a new hospital with son Chester.
Today researchers based at Imperial College London and the charity Medical Detection Dogs have published their ‘proof of concept’ study that shows medical detection dogs can sniff out the bacteria Pseudomonas aeruginosa in lab-grown samples.
The Cystic Fibrosis Trust has been funding research into digital health monitoring since 2016, with the hope that by using simple technology and clever algorithms the care of people with CF might be made more effective and efficient. Here, Dr Janet Allen, Director of Strategic Innovation at the Trust, explains the work being led by Professor Andres Floto, Professor of Respiratory Biology at the University of Cambridge. Read how the findings from his work in adults with CF from the SmartCareCF programme have led to a new study known as Project Breathe, which will explore how digital health monitoring could change the lives of people with CF everywhere and reduce the burden of care.
We chat to our Youth Advisory Group for Invisible Disabilities Week to find out what the most annoying things are about having an invisible condition like cystic fibrosis (CF).