Sara Cuevas Ocaña is a Cystic Fibrosis Trust-funded PhD student and part of the Epithelial Research Group at the Institute for Cell and Molecular Biosciences at Newcastle University. She has been working hard to help beat cystic fibrosis, and was invited to present her work to MPs at the House of Parliament on Monday 13 March.
Fundraiser and chair of the Pembrokeshire branch of the Cystic Fibrosis Trust, Sybil Edwards, celebrated her 90th birthday in September. Not long after this milestone, she received the news that she had been included on the New Year Honours list and was to receive a British Empire Medal in recognition of a lifetime spent supporting people with CF and their families.
New research using the UK Cystic Fibrosis Registry has revealed for the first time a clearer picture of predicted survival both for those born with cystic fibrosis (CF) and for those already living with the condition.
Oli Rayner, an adult with cystic fibrosis and an active volunteer in CF research design and development, discusses how responses from the CF community to an online survey about Pseudomonas aeruginosa he carried out helped secure the funding for a major CF clinical trial, and led to the findings being published in a leading medical journal.
As the UK gets to grips with what the next phase of the coronavirus (COVID-19) pandemic may bring, our community has raised a number of concerns facing people with cystic fibrosis (CF) and their families, including returning to work and school. Keith Brownlee, Director of Policy, Programmes and Support, offers an update on some of the work the Trust has been doing to support in these areas.