Pip and Nikki are sisters who share a few similarities. They’ve both taken part in Great Strides Surrey Hills twice, they both work at the University of Kent and they both have cystic fibrosis (CF). We caught up with them to hear about their favourite moments on the walks, how they support each other through training and why this year they’ve decided to take on a Great Strides challenge for the third time in the Brecon Beacons.
Researchers at UCL, funded by the Cystic Fibrosis Trust, are studying how cystic fibrosis (CF) affects all aspects of life, and they are currently particularly interested in hearing from siblings of people with CF, as well as people living with the condition and other family members. In this article reprinted from the first issue of CF Life in 2016, Imogen, now 22, wrote about her relationship with her brother Dan.
A dedicated supporter is taking part in a naked skydive for the Cystic Fibrosis Trust, inspired to raise money by his friend’s nephew Elliot, who has cystic fibrosis.
An article in Lancet Respiratory Medicine illustrates how the UK CF Registry is blazing a trail for working with the pharmaceutical industry to ensure studies are done quicker and better, benefiting people with cystic fibrosis (CF) and generating funds for CF centres at the same time.
For many people with cystic fibrosis (CF) and their families, life is a constant balancing act between the challenges of CF and everyday life - now more so than ever. Over the course of this year’s CF Week - taking place from 15 – 21 June - we will be sharing your stories and experiences of how you manage this balance, and celebrating the resilience and strength of our community. In this blog, Sean shares a few tips on how he balances travelling, treatments, relationships, wellbeing and life in lockdown with his cystic fibrosis.
The Scottish Government has announced a deal with Vertex Pharmaceuticals for access to life-saving medicine Kaftrio on the day it receives its European licence.